One Heart

Hearts have been on my mind a lot recently – especially since mine was recently examined up close and found to be in great shape after an initial scare.  We also attended a wonderful wedding in November where the song “One Hand, One Heart” from Westside Story was beautifully and lovingly performed and has stuck with me since then.

The last two years have been filled with progress, breakthroughs and happy times.  But it’s no secret to readers of the blog that they’ve also been filled with confusion, depression and despair.  I’ve written recently that the balance seems to be shifting for me towards acceptance and comfort with our “new” life.

I don’t know if I miraculously came to grips with our situation and embraced it, or if I simply stopped struggling against accepting the fact that we must look forward and can’t maintain hope that things will go back to the way they were.  I guess it’s an issue of semantics really since either way, there’s a lot less pain and anguish than there used to be – and that’s a good thing.

But back to hearts.  My being in the hospital several weeks ago underscored for us how much Mary Elizabeth and the kids need me.  But surprisingly, as I languished in the hospital with plenty of time to think (in between blood draws), I realized that I needed her just as badly.  Separation was difficult certainly because I was worried about her, but also because I really, really missed her.  I wanted her at my side keeping me company.  As you know our communication is not as easy as it was before the stroke, but I find a real comfort in her presence – in her just being with me.  And without her there I was bereft.

I confess that in the first year after the stroke, I was expecting Mary Elizabeth to die from another stroke. I didn’t tell too many people how I felt and I certainly didn’t publish it here, but it was a horrible confused time for us all. In thinking about the future, it just seemed likely that she wouldn’t be there with us in the long-term.  In some perverse way, that seemed easier for me to accept than a long life filled with the acute challenges faced by a stroke victim.  So when the doctor told us that Mary Elizabeth would likely have a normal lifespan, it was a bit of a blow – not in a disappointing way, of course – but a surprising challenge to what I had come to accept as an eventuality.

I think it might have been then that I began to mourn the loss of the old Mary Elizabeth and our old life together.  It became clear that she wouldn’t regain all of her capabilities and that I would be spending our hopefully long life together with a different person.

During that process though, something surprising happened.  My mental image of the old Mary Elizabeth – vivacious, chatty and active – was replaced by the new Mary Elizabeth – quiet, intense, and loving.

“Make of our hearts, one heart” goes the song and while the parameters our relationship have certainly changed, we are more of a unit than ever before.  Now I don’t mean to dis all you happy healthy couples out there, but it does seems like facing this adversity together brought us to this place.

So as I said a few Thanksgivings ago, there are a few reasons that I’m thankful for the stroke, and this is one of them.

5 thoughts on “One Heart

  1. This made me cry; we marry one person but as TIME goes by, children come into the picture, jobs change, friends change, homes change we all end up not being the person we were when we got married and so often that is when a marriage ends. To have the insight and fortitude to realize that and to accept and embrace the change is an amazing thing. You and Mary Elizabeth are so lucky to have each other! God’s Blessing always.

  2. So incredibly deep and loving. I agree with Suzy – so many people move on when things change in the relationship. it takes a wonderful amount of love to stick it out and embrace the change, welcoming this new and different season of your marriage. Love you all!

  3. Scott, nobody talks about this stuff so thank you for your–as usual–amazing honesty. So glad I have the chance to read your writing. Just shared the link to this post on Facebook. Thinking of you and the family!

  4. Hi Scott,
    First, I’m so happy to hear that you seem to be feeling much better, great news!
    Secondly, having gone through two years of a devastating illness with my husband and all the complications which arose from the original Cancer diagnosis, I know exactly how you felt about Mary Elizabeth dying from another stroke. With me, each day was met with fear and trepidation. I thanked God each night when we made it through another day and was petrified each morning at the prospect of what we would face the next. We all know that there are no guarantees and that our lives can change drastically at the blink of an eye. You and I know that as do many others. So we greet each morning with renewed hope, thankful to have our loved ones in our lives, no matter how much that person has changed, and make the best of it. I treasure the time spent with my husband, he is my best friend and I hope we have many more years together.

  5. Incredible candor. May I offer a reflection? When you said that you would “spend your hopefully long life together with a different person” you still meant that Mary Elizabeth is the SAME person you married. But are you the same person you were 2 years ago? The same as last week? Someone must have said this before, but “To live is to change”.
    Your blog is all about how people adjust, adapt, and evolve, especially as they recover from a tragedy. Change also becomes very obvious as people age. The transformation can be so profound that a person in one stage of life cannot be recognized as the same person. But are they not the same soul? We must all ask the questions, “Who am I?” and “Who are you?” Even as we do that, it’s only in the act of committed love that we can truly accept them for who they are.
    Your commitment has been obvious, heroic, and inspirational. I am grateful for how you’ve helped me appreciate those in my life who have changed.

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