Well, it’s been exactly one year since we arrived back in New York from London.
I remember that day like it was yesterday – every detail from showing up at Royal London Hospital at 5:00am to pick up Mary Elizabeth on the way to Heathrow to our arrival at Columbia Presbyterian later that day – and everything in between. Mary Elizabeth doesn’t remember much about that day, but I’ve given her a detailed description several times – including the hero status of our friend Gary who came over to help escort us back home.
Mary Elizabeth would ultimately spend another 5 weeks in the hospital and suffer several minor strokes while there. It was however a period characterized by rapid change and aggressive therapy, supported by intrepid staff at Columbia Presbyterian and building on the excellent work of the professionals at Royal London. It was a little surreal being home again after so many weeks away and I was struck by the newly-frenetic pace of my life. The time in London had been intense in many ways – but was downright relaxing compared to what I faced upon my return. A paradox which continues today.
I admit to feeling nostalgic about our days in London on several levels. It was logistically easier – I had three things to worry about: Mary Elizabeth, work and bell ringing. Everything else back at home was being looked after by other people. From an emotional perspective, there was a lot of anxiety about Mary Elizabeth’s recovery and about the logistics around getting her home. But along with that anxiety was a lot of hope for a full and robust recovery. That feeling of hope – fueled no doubt by adrenaline and rapid improvement – did seem a lot more accessible then than it does today.
Now before you all think I’m being too negative, understand that we haven’t lost hope – it’s just coming from a different place now, and perhaps a little harder to conjure up on a consistent basis.
Because while I am incredibly encouraged – and awed – by Mary Elizabeth’s recent progress, the uncertainty of the future weighs heavily on our shoulders and tempers our enthusiasm with a grim determination. Unburdened by the acute challenges we faced a year ago, we now have the bandwidth to consider the future and think about what shape the trajectory of Mary Elizabeth’s recovery will take.
Thinking about where we’ve come in the last year helps, but we need more substantial fuel for the fire of Hope to burn brightly.
I’ve said before that it’s love – and that’s a large part of it – but I’ve been thinking a lot about faith these days (it is Lent after all) and how it inspires Hope. We can’t predict the future and just saying that everything will be okay begins to sound hollow after a while. I’ve been drawing on faith – a conviction based on belief when concrete proof doesn’t exist – to help us cope, and face more brightly whatever our future brings.
For who knows what the coming year will hold? Certainly not me. What I do know however is that Mary Elizabeth and I have had another year together, side by side with our three kids and backed by the wonderful support, good wishes and prayers of our friends and family. Thank you.
You have written about this acceptance of the new “reality” before. This is just an observation and NOT criticism but perhaps you (and anyone else) need to internalize truly, with time. It’s okay to say that you are resentful and angry and that you feel ripped off. As I have said in my blog about having chronic pain illnesses “I didn’t ask for this.” And, either did you. So it’s ok, we all know with our hearts that you love Mary Elizabeth with all your heart. But now, that the critical part is over, it’s really ok to just be angry. Give it some time. Your unknown friend in NY.
Hey, that is a good thought. I bet it keeps you in a good place, and might help those who read it. It is simply the most down to earth statement of faith I have read in a long time. So my prayers are with you, and I believe with you that some of the best is yet to come.
Ah, Lent. It is very apropos that the year anniversary of your return is during Lent. I always struggle during this time, because we are in a space of cleansing and renewal, but there’s so much suffering. I’ve really been thinking a lot about the suffering piece lately, and your post helps bring another perspective on faith. Faith isn’t just praying for good things and then waiting for them to happen, it’s a source of comfort and mystery.
I look forward to hearing how your journey continues to evolve.
Hi, Scott,
It was awhile between your posts and I have had medical challenges for myself and family. Hearing your musings is a reminder of the amazing faith journey walked by you and your lovely bride the last year and a half.
It has been a challenge of faith.
Reminds one of St. Paul’s words to the Romans, chapter 5: “Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us.”
Blessings to you and Mary Elizabeth as you persevere!
Richie told me Charlotte was 1st chair at the 6th grade concert. Congratulations to Char!!! And he said she has a solo part which she executed beautifully. Please send her our best wishes for her musical future.
We are about to go see Richie play in his final high school performance. He’s been accepted to a number of schools and will attend Drexel University in the fall.
Our thoughts are with you always.
Love to all,
Lauren, Rich, Erika, Allison and Richie