Love and Lemonade

We had a follow-up visit with the Neurologist at Columbia Presbyterian yesterday and the news is good.

The last time we saw him was in June so he was able to see tremendous progress.  When we were there last summer, Mary Elizabeth couldn’t tell him what the date or year was, how old our children were – or even the name of the hospital we were in.  Yesterday, she got all that right – of course!

The other good news is that her MRI scan shows no evidence of further strokes – something we were worried about.  So that fact means that there is less of a concern about recurrent strokes, and the possibility that the stroke in 2009 and subsequent strokes in 2010 were isolated and not part of a trend.

The less-than-great aspect of yesterday’s visit is that the doctor feels that Mary Elizabeth has made most – if not all – of the progress that she will make.  More than a year after the stroke, he feels that she has likely reached the plateau phase of her recovery and any progress she makes now will be slow and not so discernible.

I feel a little bit like we’ve been on a train, and have been told to get off before we get to our destination.   For my fellow Long Islanders, it’s like buying a ticket for Locust Valley and being kicked off the train at Jamaica.  I want to cry out, “But we’re not there yet!  We have so much farther to go!”

So I was feeling a little conflicted about last night’s visit.  I’m so grateful for the progress – let me just say amazing progress – that Mary Elizabeth has made, and certainly that there have been no more strokes.  But I’m a little stunned.  I guess I had expected to be told that she was going to get better – or possibly worse.

Recently, I’ve been thinking that possibly the most terrifying alternative was no change at all.  Because while there has been such progress, the challenges of daily living are sometimes hard to bear – even with all the wonderful help we get – and I’ve been doubting my ability to keep it all together – kids, job and Mary Elizabeth.

So much for the stalwart, positive-thinking Scott…

My youngest daughter Louisa is our designer-in-residence.  Holiday decorations are her responsibility – something she embraces with enthusiasm and skill.   So now that Christmas and Epiphany are officially behind us, the next big decorating challenge is Valentine’s Day (I guess  Groundhog day is under the radar).  So this morning, in the pre-dawn chill, I was heading out the door to catch a train and I saw it – right in front of my face.

On one of the glass panes of the back door,  Louisa had placed a big red gel heart with the word “love” inscribed within it.

There it was – the answer I had been looking for – the balm for my troubled mind. My doubts, concerns and fears began to melt away because there it was – the one and only thing we really need – love.

So yes, the demands of our daily life – now into the foreseeable future – will be at times difficult to bear, but I have been given the gift of love – many times over – and I can never take that for granted, or let it be overshadowed by doubt and fear.

So I sally forth, with the word “love” inscribed on my heart, and when we encounter piles of lemons as we will again and again, you know what we will do – make lemonade!

6 thoughts on “Love and Lemonade

  1. She has made amazing progress over the last year – just be happy that you can see her every day and knows that she absolutely adores you and the kids and you are all together – in good times and bad. And that’s true love forever.

  2. Yes, it is all about love. Your posts, Scott, frequently make me stop and think, especially when I get in a negative or defeatist frame of mind.

  3. Your posts continually remind us what is important in life and sometimes its kids who are the best at making that clear. Charlotte, Clarke, and Louisa are incredibly resilient and I’m sure they are a source of inspiration to both you and ME.

  4. I had a brain anuerysm on 4/21/00. Then I had a stroke 3 weeks later. It effected my speech and I couldn’t even add 2+2. They said what ever I had after 18 months that was it. It is not true!! Now I am living alone and I am driving. I came a grandmother on 9/16/10. Courtney and Amanda had a little girl named Isabel Rose and they call her Izzy. I know you will get better. Love, Rosellen

  5. Scott your strength and the love around you will hold you up and help you, Mary Elizabeth and your children. Mary Elizabeth is a tremendous woman in so many ways. Do not let the doctors predictions get you down. She has progressed significantly and I have no doubt she will continue to improve. God has been with you all the way. There is every reason to continue to hope for the best.
    Our love and prayers are with all of you.
    Laurie, Rich, Erika, Allison and Richie

  6. Scott and Mary Elizabeth,
    First off, I KNOW that progress will continue to be made.
    “The steadfast love of the Lord never ceases; His mercies never come to an end. They are new every morning . . . great is thy faithfulness, O Lord.”
    The brain is amazing, you are “fearfully and wonderfully made”. Just keep putting one foot in front of the other and trusting in your Maker, and you will progress.
    Second, I think doctors are sometimes like meteorologists: they know a lot, they can look at signs and interpret, they can make their best forecast based on the best information available, but they aren’t always right. Why? Because God is at work, and circumstances change. What is needed is trust!
    So I will continue to expect good reports.
    God bless,
    Maria

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